From Our Very Own: Kasia Strehle
The chronic/rare illness life is getting Christmas cards from your local pharmacy.
The chronic/rare illness life is getting Christmas cards from your local pharmacy.
- It's sometimes not being able to get out of bed due to physical symptoms and pain.
- It's losing friends since your illness and disability make you "flakey".
- It's being called an inspiration by people you don't even know because you got up and went to the God-damn grocery store and your ill and disabled.
- It's being told that you should just eat meat or become a vegetarian or change your eating habits drastically.
- It's having enough doctors to change the names of the week to theirs.
- It's when you go to a new ER and you tell the Doctors what to give you.
- It's being told that all you need to do is change your attitude.
- It's being on more meds then all your grandparents combined.
- It's knowing more medical terminology and information then most pre-med students; you help your friends study for the MCATS.
- It's having to take an elevator up three floors and getting evil looks for being lazy.
- It's being all alone since no one you've ever meet has your disease and your spoonie friends are in another country.
- It's not having family understand so you're constantly shouted out for being lazy or told that no one wants to hear about a young person in pain.
- It's being told that the family spends too much money on your medical supplies and it's not fair.
- It's having Netflix as a best friend for all those days you can't function.
- It's telling your doctor what you think you have.
- It's explaining to new doctors what you have.
- It's being told that you’re too young to have medical problems.
- But most of all it's not fair.